In a recent FSHD Society University webinar, Project Mercury Chair Emma Weatherly reflected on three years of global collaboration dedicated to preparing the FSHD community for future therapies. Spanning ten countries, Project Mercury has helped expand FSHD registries to more than 10,000 patients worldwide, strengthen clinical trial capacity, develop readiness toolkits and frameworks, and advance […]
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One Collective Voice: Stories from World FSHD Day 2026
On June 20, World FSHD Day unites the entire FSHD community – individuals living with FSHD, their families, friends, and communities, and the research and clinical community – to celebrate resiliency and raise awareness about facioscapulohumeral muscular dystrophy (FSHD). The World FSHD Alliance supports this global day of awareness by helping organizations, leaders, and advocates […]