On June 20, World FSHD Day unites the entire FSHD community – individuals living with FSHD, their families, friends, and communities, and the research and clinical community – to celebrate resiliency and raise awareness about facioscapulohumeral muscular dystrophy (FSHD). The World FSHD Alliance supports this global day of awareness by helping organizations, leaders, and advocates […]
An Sasala
World FSHD Day 2026: International Collaboration, Global Awareness
On June 20, World FSHD Day unites the entire FSHD community – individuals living with FSHD, their families, friends, and communities, and the research and clinical community – to celebrate resiliency and raise awareness about facioscapulohumeral muscular dystrophy (FSHD). A shared sense of purpose guides our work in 2026: together, we tell a collective story. […]