One Collective Voice: Stories from World FSHD Day 2026
On June 20, World FSHD Day unites the entire FSHD community – individuals living with FSHD, their families, friends, and communities, and the research and
June 17, 2026
News & Updates
Hope starts with information.
World FSHD Day 2026: International Collaboration, Global Awareness
On June 20, World FSHD Day unites the entire FSHD community – individuals living with FSHD, their families, friends, and communities, and the research and
June 2, 2026
FSHD Webinar: Anything & Everything related to fundraising
Within the FSHD community, raising funds to enable national patient organizations to support patients, advance scientific research, raise awareness and advocate for better care is
April 16, 2026