News & Updates

Hope starts with information.

FSHD Webinar: Anything & Everything related to fundraising

Within the FSHD community, raising funds to enable national patient organizations to support patients, advance scientific research, raise awareness and advocate for better care is

April 16, 2026

FSHD High 5 Challenge

Introducing the High 5 Challenge, an awareness and fundraising campaign created and led by folks living with facioscapulohumeral muscular dystrophy (FSHD). The campaign seeks to

April 14, 2026

FSHD Study – University of Birmingham

Please consider the following announcement if you reside in the UK:

April 7, 2026