News & Updates

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FSHD Society University Recap: Project Mercury’s Global Impact and the Road Ahead

In a recent FSHD Society University webinar, Project Mercury Chair Emma Weatherly reflected on three years of global collaboration dedicated to preparing the FSHD community

August 18, 2026

One Collective Voice: Stories from World FSHD Day 2026

On June 20, World FSHD Day unites the entire FSHD community – individuals living with FSHD, their families, friends, and communities, and the research and

June 17, 2026

World FSHD Day 2026: International Collaboration, Global Awareness

On June 20, World FSHD Day unites the entire FSHD community – individuals living with FSHD, their families, friends, and communities, and the research and

June 2, 2026