Quarterly Skill Shares
Every three months, the steering committee offers virtual meetings and a welcoming space for FSHD families, advocates, clinicians, and researchers to stay informed about developments from all over the world. Our quarterly skill share meetings feature expert-led sessions followed by interactive Q & A, ensuring practical knowledge exchange and actionable insights.
Upcoming Meetings
Saturday, July 11th (2pm CET / 8 am EST):
“IRC & FSHD Patient Connect Recap”
Saturday, October 3rd (2pm CET / 8 am EST)
tbd
Past Meetings
Saturday, April 11th
“FSHD Muscle Regen Update”
Neil Camarta shared progress on a practical, partnership-driven approach to muscle regeneration R&D. He described ongoing work to identify additional candidates and explore combination-therapy strategies.
Saturday, January 10th
“Project Mercury”
Strong communities underpin sustainable organizations, enabling us to advocate effectively and prepare for future therapies.
Want to learn more about past or upcoming meetings? Use our contact form to stay informed and connected.