In a recent FSHD Society University webinar, Project Mercury Chair Emma Weatherly reflected on three years of global collaboration dedicated to preparing the FSHD community for future therapies. Spanning ten countries, Project Mercury has helped expand FSHD registries to more than 10,000 patients worldwide, strengthen clinical trial capacity, develop readiness toolkits and frameworks, and advance […]
Miriam L.
FSHD High 5 Challenge
Introducing the High 5 Challenge, an awareness and fundraising campaign created and led by folks living with facioscapulohumeral muscular dystrophy (FSHD). The campaign seeks to increase awareness of FSHD’s existence and it effect on muscles, specifically, the inability to raise your arm to give a high five. How to Participate 5 steps is all it […]