Quarterly Skill Shares
Every three months, the steering committee offers virtual meetings and a welcoming space for FSHD families, advocates, clinicians, and researchers to stay informed about developments from all over the world. Our quarterly skill share meetings feature expert-led sessions followed by interactive Q & A, ensuring practical knowledge exchange and actionable insights.
Upcoming Meetings - Save the Date
Saturday, April 11th (2pm CET / 8 am EST)
with Neil Camarta “FSHD Muscle Regen Project Update”
Saturday, July 11th (2pm CET / 8 am EST):
“IRC & FSHD Patient Connect Recap”
Saturday, October 3rd (2pm CET / 8 am EST)
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Want to learn more about upcoming meetings or receive reminders? Use our contact form to stay informed and connected.