About the World FSHD Alliance (WFA)

This global alliance was established because together, by sharing resources, strategy, and “speaking in one voice,” we can accomplish much more in education, support, and advocacy. Just as importantly, FSHD clinical trials will be international in scope. Coordinating our messages and outreach efforts will result in more timely, cost-effective ways to engage with industry around drug development, clinical trials, regulatory approval, and patients’ access to therapies.